The start of 2018 I saw my dear husband and father of two young children, Bahman collapse and be diagnosed with terminal Stage 4 Glioma and has been given a life expectancy of 6 to 12 months.
Before he collapsed Bahman was a strong independent man who was full of energy and enjoying life.
In January 2018, after he collapsed, Bahman underwent open brain biopsy and the results from a biopsy, confirmed our worse fears. Terminal Stage 4 Glioma, which is inoperable. As the tumour is in close proximity to the brain stem there are no surgical options available. We were advised that he would need to start aggressive Radiotherapy and Chemotherapy treatment. In the UK we have been told that is very unlikely that he will get any better, they are only were hoping to keep him in the same condition and stop the tumour for a short period of time with the radiation. After biopsy his condition deteriorated every day, he couldn’t speak, couldn’t sit or walk, needed feeding. To witness our beloved Bahman weaken to this degree has been heart-breaking for our family, especially for our children. Their strong father who always had time for them and spent hours playing with them, now is confined to a chair and is totally immobile without assistance.
BUT, OUR FAMILY HAVE NOT GIVEN UP HOPE and through research we have found a clinic in Germany who are carrying out pioneering treatment. The Treatment involves next generation genetic testing and immunotherapy.
We started the treatments in April 2018 and after 3 month Bahman’s condition improved considerably. The tumour kept shrinking and now it is smaller by 40 percent. Bahman now can speak and socialize; he is more mobile and has no double vision. He is able to go out with friends and engage with his children.
Hallwang clinic is located in the middle of the Black Forest in a beautiful tranquil setting. People all around the world come here for treatments and it was very therapeutic to speak to other patents and their families and hear their stories. Many of them achieved amazing recovery. We really enjoy every visit. Everybody is very kind and welcoming. The doctors and nurses are very caring, the kitchen staff, waitresses and housekeeping staff is very helpful. The food is simply amazing and healthy, sourced from local organic farms. They pay attention to every detail. We can also enjoy complementary relaxation sessions from the philologist.
Just a year ago my husband has almost died, has been given less than a year to live. Thanks for the synergy of the therapies he is stable and feeling well, recovered from a hopeless situation and we hope we can carry on many years to come.
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