"You are unique - and so is your treatment"
"You are unique - and so is your treatment"
The start of 2018 I saw my dear husband and father of two young children, Bahman collapse and be diagnosed with terminal Stage 4 Glioma and has been given a life expectancy of 6 to 12 months.
Before he collapsed Bahman was a strong independent man who was full of energy and enjoying life.
In January 2018, after he collapsed, Bahman underwent open brain biopsy and the results from a biopsy, confirmed our worse fears. Terminal Stage 4 Glioma, which is inoperable. As the tumour is in close proximity to the brain stem there are no surgical options available. We were advised that he would need to start aggressive Radiotherapy and Chemotherapy treatment. In the UK we have been told that is very unlikely that he will get any better, they are only were hoping to keep him in the same condition and stop the tumour for a short period of time with the radiation. After biopsy his condition deteriorated every day, he couldn’t speak, couldn’t sit or walk, needed feeding. To witness our beloved Bahman weaken to this degree has been heart-breaking for our family, especially for our children. Their strong father who always had time for them and spent hours playing with them, now is confined to a chair and is totally immobile without assistance.
BUT, OUR FAMILY HAVE NOT GIVEN UP HOPE and through research we have found a clinic in Germany who are carrying out pioneering treatment. The Treatment involves next generation genetic testing and immunotherapy.
We started the treatments in April 2018 and after 3 month Bahman’s condition improved considerably. The tumour kept shrinking and now it is smaller by 40 percent. Bahman now can speak and socialize; he is more mobile and has no double vision. He is able to go out with friends and engage with his children.
Hallwang clinic is located in the middle of the Black Forest in a beautiful tranquil setting. People all around the world come here for treatments and it was very therapeutic to speak to other patents and their families and hear their stories. Many of them achieved amazing recovery. We really enjoy every visit. Everybody is very kind and welcoming. The doctors and nurses are very caring, the kitchen staff, waitresses and housekeeping staff is very helpful. The food is simply amazing and healthy, sourced from local organic farms. They pay attention to every detail. We can also enjoy complementary relaxation sessions from the philologist.
Just a year ago my husband has almost died, has been given less than a year to live. Thanks for the synergy of the therapies he is stable and feeling well, recovered from a hopeless situation and we hope we can carry on many years to come.
Jayden was diagnosed with glioblastoma multiforme just last year, one month before his 17th birthday. He had to undergo surgery and combined radiotherapy with temozolomide.
Temozolomide was then discontinued, as the tumor reocurred, and another surgery was performed followed by chemotherapy. In the last months, Jayden´s condition worsened rapidly with increased immobility and loss of vision. He was unable to open his left eye. That is when Jayden first came to the Hallwang Clinic, and was started on a combined immunotherapeutic strategy. Now, 2 months later, Jayden’s condition has improved, he has started moving his legs and arms again, and is able to open his left eye occasionally. It is still a way to go, but we are happy Jayden is gaining more strength every day now.
Please note that due to the data protection law, we cannot provide any updates about past testimonials that have been published following our patients’ wishes. Furthermore, please don’t misunderstand the testimonials as an objective and complete treatment summary. In many cases, the patients use testimonials to express their gratitude to our team, as we have supported them in a very difficult situation, regardless of their treatment response. In case of a patient’s death, we cannot always publish this under the testimonial due to the data protection law. In case you are a patient or a legal representative and want to have a testimonial removed, please contact our administration: email@example.com
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1O - Clinical outcomes in post-operative ctDNA-positive muscle-invasive urothelial carcinoma (MIUC) patients after atezolizumab adjuvant therapy
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